I’ve begun to test out CPAP again. Showed Stanford nurse T.H. ResMed MyAir data from March, including a night where I reached 20 events / hour; she still thinks CPAP is unneeded for me. (Latest data: 16.8 + 9 + 3.1 + 6.8 + 8 + 17.2 + 12.5 + 8.7 + 11.9 = 94. Average: 94 / 9 = ~10.44 events / hour.)
The squealing problem that annoyed the heck out of me was seemingly fixed by tightening the ends of the tube. However, it has not completely gone away; some nights, minor squealing returns. What makes it extra annoying is that it’s near impossible to reproduce during the day, making it hard to debug.
One theory I’ve come up with is that the squealing is related to the breathing problems that cause early morning seizures. That’s why it cannot be reproduced in the daytime. The poor breathing puts extra pressure on the mask, causing the noise.
That would also explain why sometimes CPAP makes me feel super gassy. The poor breathing traps the air inside my organs + stomach. The CPAP mask, with its lack of mouth breathing, makes it even harder for that air to leave.
Anyway, if that theory is correct, it would mean CPAP really is unnecessary. After all, the point of trying out CPAP in the first place was to help fight those problems. However, it could possibly act as a diagnostic. On nights when squealing occurs, it would mean that the food blockage is bad and that I have to be extra careful the rest of the night.
